Thursday, August 13, 2015

6 months later... Good news!

Last week I did a PET scan, and this week got back some fabulous results!


1. Previously demonstrated hypermetabolic lesions in the liver and retroperitoneum have resolved. Findings are compatible with complete metabolic response. 

My ca125 numbers had remained low over the last 6 months, so things were looking really promising, but getting this scan result really lets me exhale and relax.  I have an oncologist appointment in a few weeks, and I'm guessing we'll just go back to monitoring, with more and more time between visits the farther out we go.  :)  I am so thrilled!!

Friday, February 27, 2015

Wait and Watch

My appt. went well. The radiation oncologist was happy with the way things are on the scan (although he didn't see the scan itself, only the report). But the fact that they shrunk makes him believe we are on the right track, they may still get smaller. He doesn't even think we should scan again for now, just follow the ca125.

Wow, that's great. So does that mean no more chemo?
I think so. But now I need to relay what he said to my oncologist who will have the final word. Not scanning, and not doing anything when there may be cancer cells still in me, makes me (and Ethan) nervous. But maybe this is the new normal and I'll become more comfortable with it.

It is certainly some hard decisions to be making.

Monday, February 2, 2015

More work to be done

Radiation therapy works by damaging DNA, especially of rapidly dividing cells like cancer.  It keeps working after treatment is finished, so I had to wait 3 months before doing a scan to see what was actually happening.  Of course our insurance company denied the PET scan, so I did an abdominal/ pelvic CT a couple of weeks ago, and it showed that the tumors are still there.  Smaller, but still there... 

Now I'm waiting for my appointment with the oncologist.  All I know so far, is that it looks like the plan is to continue treatment.  I did 2 of the 6 rounds of chemo before the radiation, so maybe I'll be picking up where I left off. 

I'm feeling surprisingly level about all of this.  These tumors were pretty small to begin with, and now they're smaller.  Chemo sucks, but I can deal with it.  Meditation helps and so does the tremendous amount of support being continuously offered by family and friends.

Monday, December 8, 2014

Up Next?

Up next didn't end up being a scan, ca125 or more chemotherapy...  I got a call from my husband letting me know of a last minute work trip, and I got to tag along!  Within 3 days we were on the plane to Lisbon where we stayed for a week.  Followed by a week in Paris.  Every other November in Paris is the Month of Photography, so I spent as much time as I could in the galleries.  My energy was lower than usual but I didn't let that stop me and I had an amazing time!

Now we're back.  The icing on the cake...  2 months after radiation I just did my first ca125 and it came back this morning-  5  !!  I am feeling tremendously lucky at the moment.

Thursday, October 23, 2014


10 radiation treatments done in a couple of weeks.  Lots of back and forth to the city, some side effects- a little nausea, a little fatigue and a general lack of interest in food.  Now a week has gone by and these are starting to let up.  And I get another "vacation."  3 more weeks until the next oncologist appointment.  Up next?  Probably another scan, ca125 and possibly more chemotherapy.

Wednesday, October 1, 2014


Had my first radiation treatment this afternoon.  Felt a little nauseous a while later, maybe nerves...  At an earlier appointment they did a simulation where they lined me up with the machine and gave me 4 small dot tattoos.  Today they used the dots to position me and did a dry run, followed by the treatment which took about 10 minutes.

Oh, and hey!  I forgot to mention...  2 weeks ago my ca125 was

!!!  8  !!! 

Wednesday, September 17, 2014

Unexpected change of plans!

A major shift in plans happened at today's chemo appointment.  My platelet count took a nose dive, so no chemo for me today.  Radiation will start on Oct 1st for 2 weeks, so we'll give my body a break to bring all my blood numbers back up.  Red cells, white cells and platelets had all dipped very low.  Radiation will be followed by a month and a half or so break, then a PET scan to see where I'm at.  Probably chemo will start back up at that point, but who knows...

It feels very surreal.  My brain hasn't caught up with the news.  It's telling me I should be feeling miserable right about now, but no, I'm already back at home and feeling great!  It also feels a little scary, like if I'm not feeling crappy then I'm not going to kick this cancer.  But my oncologist reassured me that the chemo was working so the tumors are smaller and this is a good time to do the radiation, and it won't effect my outcome negatively.  I'm definitely going to enjoy this small reprieve!