Wednesday, September 10, 2014

Catching up

A lot has happened in the month since I last posted.  I had a port (yes, they had a good laugh in the OR) inserted in my chest with a catheter going into my jugular.  Best part about this day was Melanie.  She was so kind to drive me, keep me company and massage my feet!  The rest of this week involved a total mind/body meltdown, with just about every side effect known to mankind.  Week 1 of each round is a double dose- Carboplatin and Taxol together.  This and recovering from a minor surgery pushed me over the edge.  I was seriously ready to give up but luckily the following 2 weeks were much much better.  An irregular heartbeat and my hair falling out were the main side effects.  Highlights of these 2 weeks were a birthday massage with Sar, my sister returning from Europe and a trip to Pier 24 my absolute fave photo gallery.

Round 2 started off with a visit with my oncologist where they did a ca125 blood test.  It went from 65 down to 31.  Not bad for only 3 weeks doing chemo!  The first week of round 2 was pretty crappy but nothing even close to the last time I did the carbo/taxol combo.  Again followed by a much easier week.  Knowing this pattern makes it easier to get through the more difficult times.

Last week I went to UCSF for a consultation with a radiation oncologist.  He had a different approach than the doctor at Stanford.  He is recommending we use radiation to eliminate the tumors sooner rather than later, and keep doing the chemo to mop up any remaining cancerous cells.  This would involve 2 weeks of treatment.  I'm waiting to hear back from them, but my guess is that this will start in the next few weeks.

One of my seriously low points was losing one of our cancer support group members, Liz Esterly.  I've been going sporadically since I was first diagnosed in 2008.   Liz was one of the rocks of our group.  Always there, always cursing, saying exactly what was on her mind, she kept us laughing and was 100% there for anyone needing support or a hug.  The idea of her not existing is a very difficult concept for me to fathom...


  1. So sorry to hear about Liz. Sigh.

  2. Glad to hear that things are improving and that your spirit continues to stay afloat and rise up against the flood of stuff thrown at you. I'm especially pleased to hear that you are making your doctors work harder at pounding at the stuff that gets in the way of your much more exciting activities and thoughts. I hope you have found ways to capture more motion, evoke more emotion and generally just fascinate all of us with what you discover.
    Know that all of your cousins here in Chicago are thinking of you frequently and sending you lots of wishes, bidding the universe to stop messing with you and of course shipping lots of love as fast as we possibly can.